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Frequent Answers and Questions
  1. Whatís in it for me?
  2. Unfortunately nothing in the short term! The samples are anonymised so we cannot link back results to individuals and projects such as this rely on the generosity of volunteers who will receive no immediate benefit. It may be that research some years down the line may lead to better treatments or screening for a particular disease.

  3. Will I get my results back?
  4. No. As part of the procedures for setting up the study, we have to get permission from an ethics committee. They insist that we anonymise the results so that we cannot link them back to individuals. However, we will be releasing general result, which will include results by region and we will also be comparing the distribution of non-unique surnames with the genetic map.

  5. Who will have access to the samples?
  6. The blood samples will be processed centrally by the laboratory in Oxford. Lymphocytes and cell lines grown from them will also be stored securely. DNA, once it has been processed, will be available to future research but as the samples will be anonymous, it will not be possible to link samples back to individuals.

  7. How much blood will it take?
  8. We will need about 20ml of blood and about 30 minutes of your time.

  9. Can my family members take part as well?
  10. Sorry no. You share DNA with your relatives (e.g. half your DNA is the same as your mumís and the other half is the same as your dadís). If we took samples from known relatives, it will bias the samples for a particular area. Spouses and partners on the other hand are encouraged.

  11. Do I have to go somewhere to give a sample?
  12. Much of the time we can arrange for someone to come to you. However we cannot always do this and may ask you to travel a short distance to a venue. Alternatively, we can occasionally send kits to volunteers to take to their local GPs. If you have to travel, you can claim the costs back if you want to.

  13. What if my grandparents are not alive?
  14. No problem. Itís only you the volunteer that we need a sample from. We only need to know where your grandparents were born.


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